Tourettes
Wednesday, February 4, 2015
Tuesday, February 3, 2015
WOW, what an amazing weekend we had. We got out on Saturday and went to my parents house for a day of good ol yard work. We were able to help clean out around their old barn by pulling out trees, shrubs, limbs, vines and any other yard debris we could get our hand on. Austin was a big help to us. Also it gave him a chance to get out of the house for a while and take out some frustrations on the debris. Then he had a friend come over and it gave him a chance to talk and play with someone his own age. He really enjoyed that.
On Sunday we surprised Austin by taking him and 2 of his old classmates from school up to Atlanta for an exotic and classic car show. It was filled with all kinds of automobiles. He is all into cars right now especially Lambo, Ferrari and Lotus. He just thought he was in heaven with all those cars. He was having fun running around with his friends snapping photos and telling us all about the cars.
Then on the way home we stopped by the Varsity in Atlanta for some good old chilly dogs and fries. I think they really enjoyed the food and fellowship. Austin did not want to go home cause he knew he was going to have to tell his friends goodbye and leave their house. We stayed for about an hour for them to play but it always the same when you go to leave, "Oh mom, why cant we stay longer?" As we were leaving we told them that we could get back together again and let them play some more.
And then Monday came around. We don't know if it was because we worked him on Sat, whether it was the all day trip on Sunday or if it is because of the full moon phase right now but Austin is not having a good week right now. He is suffering with new tics of yelling "yep yep" and thrusting his head and neck and even his entire body. Mandie said he was off and on all day and even the IPAD and XBOX did not seem to help him. After I got home and tried to talk with him and apply some oils for relief, no help. It was now time for the sleepy medicine. We try not to use it unless it just comes down to the end and I think he had reached it. His body and mind was tired. I gave him his "relief" medicine that helps him in case of an attack. It was probably about 30 minutes later he came over and crawled up with me into the recliner and we watched television. I miss the old days when he was a baby and he would sleep in my arms in the recliner so when he said he wanted to get in the chair with me, I made room for him. I was rubbing his neck and back and before I knew it he was asleep. He was finally getting some "relief". Then before I realized it I was asleep too. That is some good ol sleeping time. I finally woke up around 11:30 and put Austin to bed. When I was getting ready for the gym this morning I heard him making some tic noises while he was sleeping. I'm waiting to hear how his morning is going but until then, lets just keep praying. Thank you.
On Sunday we surprised Austin by taking him and 2 of his old classmates from school up to Atlanta for an exotic and classic car show. It was filled with all kinds of automobiles. He is all into cars right now especially Lambo, Ferrari and Lotus. He just thought he was in heaven with all those cars. He was having fun running around with his friends snapping photos and telling us all about the cars.
Then on the way home we stopped by the Varsity in Atlanta for some good old chilly dogs and fries. I think they really enjoyed the food and fellowship. Austin did not want to go home cause he knew he was going to have to tell his friends goodbye and leave their house. We stayed for about an hour for them to play but it always the same when you go to leave, "Oh mom, why cant we stay longer?" As we were leaving we told them that we could get back together again and let them play some more.
And then Monday came around. We don't know if it was because we worked him on Sat, whether it was the all day trip on Sunday or if it is because of the full moon phase right now but Austin is not having a good week right now. He is suffering with new tics of yelling "yep yep" and thrusting his head and neck and even his entire body. Mandie said he was off and on all day and even the IPAD and XBOX did not seem to help him. After I got home and tried to talk with him and apply some oils for relief, no help. It was now time for the sleepy medicine. We try not to use it unless it just comes down to the end and I think he had reached it. His body and mind was tired. I gave him his "relief" medicine that helps him in case of an attack. It was probably about 30 minutes later he came over and crawled up with me into the recliner and we watched television. I miss the old days when he was a baby and he would sleep in my arms in the recliner so when he said he wanted to get in the chair with me, I made room for him. I was rubbing his neck and back and before I knew it he was asleep. He was finally getting some "relief". Then before I realized it I was asleep too. That is some good ol sleeping time. I finally woke up around 11:30 and put Austin to bed. When I was getting ready for the gym this morning I heard him making some tic noises while he was sleeping. I'm waiting to hear how his morning is going but until then, lets just keep praying. Thank you.
Tuesday, January 27, 2015
GOOD DAYS AND BAD DAYS
The title says it all. We have good days and bad days but in all we are thankful. This is truly a learning experience. Everyday we are learning new things that we can try that has helped for others. We are now experimenting with oils, especially Lavender. It is suppose to be a calming oil. It is helping Austin sleep better at night and be more relaxed. Mandie is now a home school teacher and helping Austin with his home schooling.
I am in the process of getting some web pages set up for donations to the tourettes association. I will have one on Active.com which is a running website used to sign up for races. Another webpage I am going to set up is going to be gofundme.com where everyone can see it. I am humbled from the overwhelming support of people that are already telling me of the money for donations that will be given in Austin's name. Also I am honored to have 2 great friends that have told me that they would help me by running with me in the 100K journey and on race day.
Be on the lookout for emails that will be sent out and messages on Facebook for the donation page for tourettes but as for now, let me say thank you for the continuous prayers, thoughts and phone calls.
The title says it all. We have good days and bad days but in all we are thankful. This is truly a learning experience. Everyday we are learning new things that we can try that has helped for others. We are now experimenting with oils, especially Lavender. It is suppose to be a calming oil. It is helping Austin sleep better at night and be more relaxed. Mandie is now a home school teacher and helping Austin with his home schooling.
I am in the process of getting some web pages set up for donations to the tourettes association. I will have one on Active.com which is a running website used to sign up for races. Another webpage I am going to set up is going to be gofundme.com where everyone can see it. I am humbled from the overwhelming support of people that are already telling me of the money for donations that will be given in Austin's name. Also I am honored to have 2 great friends that have told me that they would help me by running with me in the 100K journey and on race day.
Be on the lookout for emails that will be sent out and messages on Facebook for the donation page for tourettes but as for now, let me say thank you for the continuous prayers, thoughts and phone calls.
Saturday, January 24, 2015
Welcome
First of all let me say welcome to my new log. It is titled a 100K journey for tourettes for a reason. My son was diagnosed about 2 months ago with tourettes. We have had our world changed. We were a typical family raising a child in school and trying to manage through life's basic daily needs. My son was having some serious issues with sneezing over 1000+ times in one day. We are not talking about a normal sneeze, we are talking about sneezes that would make your head spin. When he would get through, he would always tell us about how much his body would hurt. Well I guess so since you are putting the body through so much stress it has to be tired.
Let me back up now that you know what we are dealing with. We think that he started having his "tics", that is what you call any uncontrollable involuntary muscle movement, way back in the early days of his school life. He use to stand up on stage doing choir performance or any stage performance and blink his eyes over and over. Sometimes it was to a point to which it even took over some of his head movements. We always thought it was that the lights were too bright or he was having issues with allergies bothering his eyes. He went through spells of having to clear his throat over and over like he had something almost chocking him. He would have to keep a cup of water on his desk at school to drink all day when this happened. Once again we thought it was because of allergies.
We went through numerous testing to see what he was allergic to and trying to avoid those things. Someone finally told us to get a CT of his head to check and see if it was a deep sinus infection. Well, it wasn't. We then went to an ENT specialist and he said everything was clear. He said I know what it is but you need to go to a neurologist cause I can not officially tell you. We rushed over to the one that was recommended to us and within a matter of minutes, our would would now be changed. He said your son has Tourettes.
My name is Tim and I am a runner when I am not a work. I have completed over 26 marathons of which 3 of them were ultra-marathons which consisted of 31 and 33 miles. I will be trying to raise awareness and money for the official tourette's foundation by running in my 1st ever 100K ( 62 miles ) in January 2016. I will be sending out letters to try and raise money for the foundation by accepting pledges of hope in the form of cash or checks. I will be asking for people to either pledge a fixed amount or if they want to they can pledge per mile that I run. I have set the bar high for that is an amount of miles that I have not encountered. I will be putting my body to the limit that day in order to try and help those with this terrible and unstoppable disease. Who know I might just decide to keep going after I hit the 100K mark. Please follow our journey as I post updates about Austin and my running journal.
Once again thank you for your prayers and support. Until later.......
Let me back up now that you know what we are dealing with. We think that he started having his "tics", that is what you call any uncontrollable involuntary muscle movement, way back in the early days of his school life. He use to stand up on stage doing choir performance or any stage performance and blink his eyes over and over. Sometimes it was to a point to which it even took over some of his head movements. We always thought it was that the lights were too bright or he was having issues with allergies bothering his eyes. He went through spells of having to clear his throat over and over like he had something almost chocking him. He would have to keep a cup of water on his desk at school to drink all day when this happened. Once again we thought it was because of allergies.
We went through numerous testing to see what he was allergic to and trying to avoid those things. Someone finally told us to get a CT of his head to check and see if it was a deep sinus infection. Well, it wasn't. We then went to an ENT specialist and he said everything was clear. He said I know what it is but you need to go to a neurologist cause I can not officially tell you. We rushed over to the one that was recommended to us and within a matter of minutes, our would would now be changed. He said your son has Tourettes.
My name is Tim and I am a runner when I am not a work. I have completed over 26 marathons of which 3 of them were ultra-marathons which consisted of 31 and 33 miles. I will be trying to raise awareness and money for the official tourette's foundation by running in my 1st ever 100K ( 62 miles ) in January 2016. I will be sending out letters to try and raise money for the foundation by accepting pledges of hope in the form of cash or checks. I will be asking for people to either pledge a fixed amount or if they want to they can pledge per mile that I run. I have set the bar high for that is an amount of miles that I have not encountered. I will be putting my body to the limit that day in order to try and help those with this terrible and unstoppable disease. Who know I might just decide to keep going after I hit the 100K mark. Please follow our journey as I post updates about Austin and my running journal.
Once again thank you for your prayers and support. Until later.......
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